IMPORTANT NOTE

if you wish to report an adverse event related to one of our products, please contact your healthcare provider. In addition you can contact us using your local safety officer or via UCBCares.

 

HS Patient Resources

Whether you or someone you know is currently struggling with Hidradenitis Suppurativa (HS), we’re here to help. We’ve been working closely with a group of patients with HS, who are members of Patient Advocacy Groups across Europe, to hear first-hand what it is like to live with HS.* Together with this group, we’ve created a range of downloadable tools designed to support people through every step of their HS journey. From tips and tricks for managing HS to myth-busting guides, click below to find a wealth of information.

 

PATIENT RESOURCES

We would like to thank patient representatives of the following organisations:
•    Asociación de Enfermos de Hidrosadenitis (ASENDHI) in Spain; 
•    Solidarité Verneuil in France; 
•    Psoriasis- og Eksemforbundet in Norway; 
•    Hidradenitis Patiënten Vereniging in The Netherlands; 
•    AMICUS: Hidradenitis Suppurativa (HS) - Fundacja Amicus in Poland;
•    EPIDERMIA (Panhellenic Association of Patients with Psoriasis and Psoriatic Arthritis) in Greece 

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Patient Support Programmes

As part of our commitment to patients and to further the understanding of severe diseases, UCB supports a number of programmes for patients and their families. These schemes include sponsorship programmes, informative websites, mentoring projects and scholarships, all of which work towards improving the quality of life for those affected by severe diseases.

Epilepsy Advocate

Epilepsy Advocates are people living with epilepsy and caregivers seeking the best treatment for controlling their seizures with minimal side effects.

By sharing their personal success stories online and within local communities, Epilepsy Advocates strive to inspire others.

Through these interactions, epilepsy community members can learn from one another and make positive changes in their lives.

WEBSITE EPILEPSY ADVOCATE

Canine Assistants programme

Canine Assistants was founded in Alpharetta, Georgia, in 1991. This nonprofit organization is dedicated to providing service dogs to children and adults with epilepsy, physical disabilities, and other special needs.

Special dogs with special training

Seizure response dogs:

  • Retrieve a phone prior to a seizure
  • Summon help in a controlled environment
  • Stay with their person during a seizure

These dogs not only provide assistance, they can instill confidence by enabling their recipient to do activities they may be reluctant to do because they have epilepsy. They also provide companionship and contribute to the overall emotional well-being of the person they are placed with.

Seizure response dog training is made possible by UCB, Inc.

Seizure response dogs immediately change lives for their owners, but their extensive training can take up to 18 months.

That's why Canine Assistants work together with The Epilepsy CompanyTM, UCB, Inc. in the training of every dog. Their partnership ensures that each dog gets the extensive training that it needs, and that more needs of the epilepsy community are met.

 

UCB Family Epilepsy Scholarship Program™

UCB, Inc. is committed to building the lives of US epilepsy patients and their family members/caregivers. This scholarship provides financial support for epilepsy patients or family members/caregivers who demonstrate academic and personal achievement.

Website Epilepsy Scholarship Program

Parkinson's Well-Being Map™

The Parkinson's Well-Being Map™ is a tool to help you to prepare for consultations with your healthcare team, so that you can help them to understand how living with Parkinson’s disease affects you.

The Map allows you to record and monitor your Parkinson’s symptoms. It covers all aspects of Parkinson’s, so that you can highlight the symptoms that are of most concern to you and list the key questions to ask at your next consultation. This way, you can ensure that symptoms do not get forgotten or overlooked.

The Parkinson's Well-Being Map™

My RLS Monitor™

This monitor can help you to improve the communication with your doctor.

Only if your doctor properly understands how you are doing, can he/she treat or manage your RLS in an optimal way.

 

 

My RLS Monitor™ tool

Support of patient organisations in Europe

UCB is committed to comply with Industry self-regulated codes, including the EFPIA Code of Practice on Relationships Between the Pharmaceutical Industry and Patient Organisations.

In keeping with our transparency approach, support for patient organisations in Europe is disclosed here.